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 T-shirts only guaranteed if registered prior to July 20, 2014.

Families of SMA is the world’s leader focused on funding SMA research to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $55 million in research and has been involved in funding almost two thirds of all the ongoing novel drug programs for SMA.

Families of SMA is a nonprofit 501(c)3 organization, with 31 Chapters and over 110,000 members and supporters throughout the United States. The organization’s work has produced major discoveries, including identification of the underlying cause and a back-up gene for the disease, which provides a clearly defined target for disease altering therapies. The organization is also dedicated to supporting SMA families through networking, information and services and to improving care for all SMA patients.

Click here to learn more about Families of SMA and our programs.

For more information, please contact Amanda Schlemme at (563) 852-5206 or amanda.schlemme@gmail.com or Kristie McCarthy at (563) 852-5011 or bkmccarthy@netins.net.

National Sponsors


Quest Diagnostics

Total Raised: $855
Goal: $30,000
Additional Information

Cascade River View Park
101 Pierce Street SW
Cascade, IA 52033

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