The Major Gifts Committee of Families of Spinal Muscular Atrophy is a focused, strategic effort to mobilize new and additional commitments of $3 million in 2008-09 to fully fund the next phases of research into developing a treatment and cure for SMA.

Currently we have no treatments available for those affected by SMA, though there have been exciting research breakthroughs over the past decade.  Remarkable developments have been made by the dedicated SMA researchers who have been funded through the amazing community of FSMA chapters and families.  Families of SMA has funded $43 million in research to date.  This has led to the historic opportunity we have before us now.

The most significant advancement that we have seen over the last few years is the progress into practical stages.  We have been able to move forward beyond just basic research at universities to conducting industrial drug development programs and running actual clinical trials.

Click here for information on the specific goals we are trying to meet.

We will need to raise $3 million in this campaign in this fiscal year to keep these programs moving forward.  If you would like to discuss joining in this focused effort please call 800 886-1762 or email us at info@fsma.org

Thank you for your interest in supporting of our mission.