Families of Spinal Muscular Atrophy

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For Ollie - Fundraising for a Cure


My fund-raising goal:	$5,000.00
Money raised to date:	$3,880.00

Personal Image We have set up this "gift" registry page to help support a cause near to our hearts.

As you may know, Oliver was diagnosed in November of 2008 with Spinal Muscular Atrophy Type I.

He was just 3 months old.

Families of SMA is dedicated to discovering a treatment and cure for Spinal Muscular Atrophy. They fund critical research along with providing important support to families affected by this disease.

With Ollie's diagnosis, we became a part of the SMA family. It's not the type of membership you really want. But we quickly found out it is an amazing family!

Yes, they fund research.

Yes, they are searching for treatments and, ultimately, a cure.

But it is the network of people who have been touched by SMA and the *unbelievable* support they provide that makes Families of SMA so great.

We began celebrating Ollie's birthday every month on the 5th. Sadly, we will not celebrate his first birthday. Ollie lost his battle with SMA on August 3rd - just two days shy of his first birthday. In lieu of flowers, we are asking friends and family to make donations to help Families of SMA. Please help support this extremely worthy cause.

Thank you! Neil & Bekka

P.S. Keep up to date with our life at olliestale.blogspot.com.

Jakob Oliver Mastin b. August 5, 2008 d. August 3, 2009

Below is a list of donors who have donated to support me. Thanks to everyone for your support!

First Name	Last Name	Comments
Cathy	Chamberlain	We Love You Jakob Oliver Mastin!!!!!!!
	Fieldale Insurance Agency Inc
Karla	Mize	Ollie, Grandpa & Grandma love you.
Jennifer	Smith	I am so very sorry for your loss. I hope that one day a cure can be found.
Roy	Pine	We will forever miss you Ollie. Thank you so much for blessing us with your wit, smile and endearin more »»
Edwin	Smith, III	Neil & Bekka, We are very sorry for you loss and I feel honored to have met Ollie. Our thoughts ar more »»
Amanda	Burgess	We love you little one. We will do our best to make sure no other babies have to suffer. Love Dave more »»
Amy	Callipare	In loving memory of Ollie ... a true blessing to have touched many lives, many of which he had never more »»
Mayme	Fravel	I read about Ollie on Flotsam’s blog. I’m so sorry for your loss. Hope this helps find a more »»
Elizabeth	Engel	I’m here from Alexa at Flotsam. My heart is broken for your loss. I pray that soon there will more »»
Katherine	Falk	I am so sorry for your loss.
Megan	Hardisty	It has been an honor to know Ollie and your family.
Garry	Milloway	I am sure that Ollie’s life mission will continue even though his earthly journey has been c more »»
Deborah	Clarke	In loving memory of precious Ollie. With love and deepest sympathy from the Clarke family.
Bill	King	In memory of Ollie - (Bill, Blake & Debbie King)
Cathleen	Kaplan	In loving memory of Ollie, the bravest little boy I’ve ever known. Cathy and Rich
Christine	Fisher	In memory of Oliver Mastin.
Sara	Hardesty
Erin	Tom
Randy	Finger	In loving memory of Ollie.
John	Willman	Our thoughts and prayers are with you.
Erin	Lamb	Ollie has educated and inspired so many people; what a treasure we were all blessed with for such a more »»
Jennifer	York	Our thoughts are with you during your terrible time. We hope you are able to find peace.
Christine	Sampsell
Patricia	Bennett	My thoughts & prayers are with Ollie’s family and friends.
Michael	Wall	Sorry for your loss, Neil and Bekka. Oliver was truly wonderful.
John	Tillman	In memory of the little things and in the hope of big things
Caroline	Reich
Jennifer	Turner	I know that I am a better person for meeting Ollie. He touched our hearts in ways that can’t e more »»
Liz	Knox	My thoughts and prayers are with your family. Lets find a cure!
Meredith	Benston	I wish I could give more but every little bit helps, you and your son Ollie are in my thoughts.
Kathy	Hawley	Thank for sharing your precious little man with me. He brought so much to my life, I will carry him more »»
Stephanie	Hodnett	I was very moved by Ollie’s story. My deepest condolences.
Jenna	Damore	I am very sorry for your loss.
Kristin	Wagner	In memory of Ollie
Melanie	Porter	I am truly inspired by your strength, devotion, courage and patience. You and Oliver are in my thou more »»
Shannon	Winer	In memory of your beautiful boy.
Kelly	Shupe
Helen	Evans	Bless beautiful little Ollie and all the babies who struggle with this tragic condition. My heart br more »»
Neil	Mastin	Fam. Daniel und Fam. Andre
Catherine	Brittain	In loving tribute to Ollie from Mackinley’s family. Your determination inspires us.
Lisa	Feinstein
Barbara	Greenberg
Kristin	Celms
Elizabeth	Zemke	In memory of Ollie--I came over from Alexa’s blog and needed to help, somehow. My thoughts are more »»
Susan	Judd	We are truly sorry for you incredible loss.
Will	Rives	Jen Turner, an angel herself, told me about Ollie. God bless you for using your terrible loss to he more »»
Stephen	Dobbins	In memory of your precious Ollie, with our love & prayers--Steve & Sue
Angela	Wolters
Kathleen	Magill	In memory of your beautiful son. Tom & Kathy
Arlene	Gartenberg
Glenna	Dawson	We are so sorry and continue to send our love and prayers for you family. Glenna and Gene Smith
Diana	Graham	In memory of Ollie, whom we never met but heard of often from our friends the Gartenbergs.
Jeffrey	Rosner
Megan	Hardisty	Ollie’s story and your incredible strength has touched our family. Sue and Jerry Hardisty
Brenda	Wilde
Vlad	Mitchev	In memory of Ollie, let your efforts bring a light of hope in the future of others.
Christi	Gaido	Me too... just read Ollie’s story from a link on "julia.typepad.com" and wanted to h more »»
Nina	Karp	Via Julia’s blog -- I’m so sorry for your loss; many people you’ve never met are n more »»
Jay	Shortridge	I am so sorry for your loss
Emily	Flynn	I read a heartbreaking story on another woman’s blog (julia.typepad.com) and I just wanted to more »»
Cherie	Older	I’m so sorry for your loss. He was a beautiful boy.
Jennifer	Smith
Glenda G.	Alexander