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Latest News
March 9, 2010   Isis Pharmaceuticals Licenses Intellectual Property Created at the University of Massachusetts and Funded by Families of Spinal Muscular Atrophy.
To Develop Drugs to Treat Spinal Muscular Atrophy.
 
March 8, 2010   Families of Spinal Muscular Atrophy Launches Fundraising Stars Blog.
To recognize the amazing fundraising efforts made by our members nationwide which help advance research for a treatment and cure for SMA. Click here to read the full article.
 
March 5, 2010   Families of Spinal Muscular Atrophy Welcomes the New Mexico Chapter.
Click here to learn more about the New Mexico Chapter, or to find a chapter in your area.
 
February 28, 2010   Families of Spinal Muscular Atrophy Awards Grant For Gene Therapy Development for Spinal Muscular Atrophy
Click here for details of the grant to Dr. Brian Kaspar at Nationwide Children’s Hospital of The Ohio State University.
 
February 22, 2010   Families of Spinal Muscular Atrophy Announces New Translational Advisory Council (TAC) to Select and Govern New Drug Discovery Projects.
Click here for details.
 
February 19, 2010   2010 Annual Spinal Muscular Atrophy Conference Patient Care and Family Support Workshops Announced.
Click here to see the agenda.
 
February 19, 2010   Documentary on Spinal Muscular Atrophy Features Six SMA Individuals.
PBS series “Florida Crossroads” airs a moving documentary titled “Andy’s Army” inspired by the story of Andy Butler, who lost his battle with SMA last summer.
 
Fundraising Stars
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