Families of Spinal Muscular Atrophy Announces New Support Program for Newly Diagnosed SMA Families.
April 6, 2009.

Through generous donations and sponsorships, Families of Spinal Muscular Atrophy is pleased to announce a new program to assist newly diagnosed SMA families.   FSMA will now cover the registration fees for the Family and Professionals SMA Conference for all families newly diagnosed since the last meeting in 2008.

The annual conference is the largest in the world for those affected by SMA and for those involved in providing support and care for SMA patients.  The weekend is filled with networking opportunities with caregivers and other families, medical and care workshops, and an exciting children’s program.  This year we will be celebrating the 25th Anniversary of Families of SMA at the Hyatt Regency Cincinnati, Ohio, from June 18th through the 21st.

Our goal is to allow as many newly diagnosed SMA families as possible to attend and experience the benefits of this amazing conference.  The meeting gives families the opportunity to gather critical care and daily living information early after diagnosis, learn directly from experienced SMA physicians, and network with other families.

Details of the Program:
-Families of SMA will cover the conference registration fees for any newly diagnosed SMA family for up to 4 immediate family members.
-To apply for this new program please email info@fsma.org or call (800) 886-1762 and mention “Newly Diagnosed Conference Program”.

There will be 30 workshops offered during the conference covering the latest information on critical topics in SMA care.   Over 15 of the leading experts in the field of SMA medical care will lead these workshops.  Also provided will be important sessions and demonstrations pertaining to daily living topics.

Click here for more general information on the conference.

The conference will provide many opportunities to interact and receive first hand updates from the leading SMA researchers and clinicians from around the world who are working to develop a treatment and cure for SMA.  At our 2008 conference, we hosted over 250 researchers and clinicians, representing 50 academic institutions and 23 companies.

Click here to see the current list of our fantastic conference sponsors.