| | Families of Spinal Muscular Atrophy Welcomes the New Mexico Chapter. March 7, 2010. Families of Spinal Muscular Atrophy is pleased to announce the creation of a new chapter, New Mexico! Located in Albuquerque, NM, the chapter is excited to begin helping families throughout their state and fundraising to support research to find a treatment and a cure for SMA. Natasha Abruzzo, President, has been crucial throughout this process, along with her fellow officers: Sharon Petney, Vice President, Jessica Riley, Treasurer, Amber Plowman, Secretary.
When asking Natasha why she chose to create a chapter within New Mexico she said, “The main reason I wanted to start this chapter is to be here to support any other families that are given the heart wrenching diagnosis of SMA. There was no help, support or information of any kind when we found out our first child had SMA. I was handed this horrible diagnosis and no one, doctors included, were able to do more than print off some papers from the internet. I had no one to talk to who understood the medical issues I would be facing, let alone the fear, the grief, and the heartache I would face every day. So more than anything, I wanted to raise awareness among doctors, and be here to lend support in any way for other families.”
For more information about the New Mexico Chapter, please check out their web site by clicking here.
Families of SMA has 27 Chapters throughout the United States, and over 65,000 members and supporters. Through these chapters, our organization is able to provide family support to thousands of families each year affected by SMA. Along with family support, chapters also provide awareness about SMA throughout their local community and coordinate numerous fundraisers to benefit FSMA research.
For more information about starting a new chapter or finding a chapter in your area, please click here or contact Sarah Hunsicker, Chapter Coordinator/Events Manager at (800) 886-1762 or sarah@fsma.org. |