Families of Spinal Muscular Atrophy is Proud to Announce the Launch of the Erin Trainor Memorial Conference Scholarship Fund. July 7, 2010.
During the 2010 Annual SMA Conference Families of SMA officially launched the Erin Trainor Memorial Conference Scholarship Fund to provide support and funding to bring newly diagnosed families to the conference each year.
Our goal is to allow as many newly diagnosed SMA families as possible to attend and experience the benefits of this amazing conference. The meeting gives families the opportunity to gather critical care and daily living information early after diagnosis, learn directly from experienced SMA physicians, and network with other families.
Barb Trainor leads the organization of The Annual SMA Conference. This is a conference that has true impact on the lives of families, patients, researchers and doctors. This meeting has been a major influence on bringing researchers into the SMA field and establishing successful collaborations that have moved us forward towards a treatment and cure. In February of 1994, Barb and Gene lost their daughter Erin to SMA Type I. Erin’s impact is now felt by thousands. Gene and Barb have created a legacy for Erin based on supporting all other families affected by SMA through the annual conference and by running the FSMA Chesapeake Chapter, which has now raised over $2.2 Million for SMA research and support.
The Erin Trainor Memorial Conference Scholarship Fund is an ongoing fund that each year specifically supports newly diagnosed SMA families to attend The Annual SMA Conference.
Families of SMA has been hosting this conference for over 20 years. The meeting is filled with workshops, a memorable kids program, a family and professional banquet, a family carnival, and opportunities to interact with other families and get first hand updates from the researchers.
