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Families of Spinal Muscular Atrophy Announces the Schedule for The 2013 Annual SMA Conference.
February 26, 2013.

At this years conference we are launching a new Researcher Poster Session specifically for SMA families where they can speak directly with the researchers to learn the most up to date SMA research information. We are adding this new event to our Annual Conference, due to requests from both SMA families and SMA researchers for more one-on-one interaction with one another.

We are thrilled to also offer Annual SMA Conference attendees a special Disney event on Friday evening, which will include a unique group viewing of a Disneyland fireworks show!  Click here to see the conference schedule.

The Continuing Medical Education Conference, led by the Families of SMA Medical Advisory Council, will start the conference off by training up to 200 medical professionals on care for SMA patients. This truly is an incredible opportunity for medical providers from across the US to be educated by the FSMA Medical Advisory Council as well as other top SMA experts. We hope that this will heighten SMA Awareness and SMA Education throughout the United States.  For more information on the Continuing Medical Conference, click here.

The weekend will also be filled with networking opportunities with other families, a memorable kids program, and opportunities to interact with families and get first hand updates from some of the 225 SMA researchers in attendance. We are looking forward to reuniting as a community at this conference and showing our support for others. The Family and the Research conferences will again be held simultaneously with one another.

A detailed description on workshops and full conference agenda will be available in March. Registration for the conference will be open through May 9th, when it will close, and there will be no onsite registration available. All registered attendees must wear a name tag and wristband, which is provided at the conference, throughout the weekend for access to any conference events, workshops, children’s program and meals. Click here to see the conference schedule.
You must complete your conference registration with Families of SMA prior to reserving your room at the Disneyland Hotel for the Annual SMA Conference special room rate of $144 per night. This special room rate is available to SMA conference attendees from Friday, June 7th through Thursday, June 20th!
To register for the Annual SMA Conference, click here.

Families of SMA is thrilled to offer 2013 Annual SMA Conference Attendees a $5 rebate of Disney Dollars for each room night at the Disneyland Hotel and the Paradise Pier Hotel in the Annual SMA Conference attendee room block! This $5 per night rebate of Disney Dollars can be used at the Disneyland Hotel as well as the Disney Theme Parks and the Downtown Disney restaurants and merchants. For example, if a conference attendee stays at the Disneyland Hotel or Paradise Pier Hotel, in the Annual SMA Conference attendee room block for 4 nights, they would receive $20 in Disney Dollars! The Disney Dollars will be provided to 2013 Annual SMA Conference attendees at the Families of SMA registration area when attendees pickup their conference name tags and folders.

Families of SMA has been hosting this conference for 24 years. This is the largest conference in the world for those affected by SMA, and also for those involved in providing support and care for SMA patients. There is no other program like it for SMA families and professionals. The interactions between the researchers and families at one conference is extremely special. The annual conference also provides SMA children and their siblings an opportunity to make new friends and have a great time. We are expecting another great attendance of 1300 attendees.
For more information and to register for the 2013 Annual SMA Conference, click here.


 

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