Project Cure SMA
The Project Cure SMA Clinical Trial Network is a collaborative initiative between Families of SMA and clinical investigators designed to help facilitate the rapid translation of promising new therapies to individuals with SMA. The primary goal of Project Cure SMA is to develop safe and well-tolerated clinical protocols to help identify effective therapies for SMA. Please click here for their website.
Project Cure SMA has recently completed enrollment for the CARNIVAL Type I Trial at all North American sites.
There are 7 North American locations for Project Cure SMA.
1) Salt Lake City, Utah
PI: Dr. Kathryn Swoboda
University of Utah
Department of Neurology
30 North 1900 East #3R210
Salt Lake City, Utah 84132
(801) 585-9717
2) Detroit. Michigan
PI: Dr. Guyla Acsadi
Children's Hospital of Michigan
Department of Pediatrics and Neurology
Wayne State University, School of Medicine 3
3901 Beaubien Blvd. Detroit, MI 48201
(313) 745-6615
3) Baltimore, Maryland
PI: Dr. Thomas Crawford
Johns Hopkins Hospital
Department of Pediatric Neurology
Harriett Lane Children's Health Building
200 N. Wolfe Street, Suite 2158
Baltimore, MD 21287
phone: (443) 287 - 6294, fax: (410) 614 - 2297
4) Montreal, Canada
PI: Dr. Guy D'Anjou
Hopital Sainte-Justine
Neurologie Pediatrique, 5e bloc 4
3175, Cote-Sainte-Catherine Road
Montreal, Quebec, Canada H3T 1C5
(514) 374-1710 ext. 8278
5) Columbus, Ohio
PI: Dr. John Kissel
Ohio State University
Department of Neurology
445 Means Hall 1654 Upham Drive
Columbus, Ohio 43210-1228
(614) 293-4973
6) Madison, Wisconsin
PI: Dr. Mary Schroth
University of Wisconsin Children’s Hospital
Pediatric Pulmonary & Cystic Fibrosis Center
600 Highland Avenue
Madison, WI 53792-9988
(608) 262-4982
7) Durham, North Carolina
PI: Dr. Priya Kishnani
Co PI: Dr. Edward Smith
Duke Univeristy Medical Center
(919)-681-1945
