HomeLoginSite MapContact Us
Click to submit search
  Donate Now!

Top1950

ResearchFSMA CommunityFundraising
Newcompbanner
Get Involved
Registry

Connect with Families of SMA:

FacebookBanner

TwitterBanner

YouTubeBanner

Display a Printer Friendly Version This Page
2007 Research News
November 6, 2007   SMA Drug Summit Article
Published in November Issue of "Neurology Today"
 
October 1, 2007   SMA Drug Summit Held in Bethesda, Maryland
Summit on Spinal Muscular Atrophy: Investigators meet to advance clinical research for SMA, the leading genetic cause of infant and toddler mortality
 
September 1, 2007   Tikvah Therapuetics and FSMA Establish Collaboration
Press Release Annoucing Families of SMA and Tikvah Therapeutics, Inc. Establish Collaboration to Test Potential Treatment for Spinal Muscular Atrophy
 
August 1, 2007   Journal of Child Neurology Issues a Special Editon on SMA
The articles in the August 2007 issue are based on the Neurobiology of Disease in Children Symposium at the Child Neurology Society meeting in October 2006, which focused on SMA and was co-funded by Families of SMA.
 
August 1, 2007   Consensus Statement for Standard of Care in SMA Published in the "Journal of Child Neurology"
The Consensus Statement for the Standard of Care in SMA contains care recommendations by SMA experts. It is not a substitute for consultation with medical professionals. It presents guidelines only, and individual circumstances will guide treatment decisions in each patient's case.
 
June 23, 2007   Research Update Slides from 2007 Family Conference
Update on FSMA 2007 Research Activities by Jill Jarecki, FSMA Research Director
 
June 22, 2007   FSMA Selects First Novel Clinical Candidate for SMA
Families of Spinal Muscular Atrophy Announces Major Breakthrough in Development of Drug Candidate for Currently Untreatable Disease
 
June 6, 2007   VALIANT Clinical Trial for Adults with SMA
Families of SMA is pleased to announce the funding of the clinical trial VALIANT SMA Study for adults with SMA that Ohio State University is conducting through Project Cure SMA.
 
April 3, 2007   FSMA and Paratek Extend Collaboration
Press Release Annoucing Families of Spinal Muscular Atrophy and Paratek Pharmaceuticals Expand Drug Discovery Collaboration for Spinal Muscular Atrophy
 
February 14, 2007   Clinical Trials Chat
Clinical Trials Chat with Dr. Sandra Reyna and Dr. John Kissel in February 2007
 

 

Site Map Contact Us Privacy Policy Legal Terms & Conditions