SMA Drug Summit Held in Bethesda, Maryland Summit on Spinal Muscular Atrophy: Investigators meet to advance clinical research for SMA, the leading genetic cause of infant and toddler mortality
Journal of Child Neurology Issues a Special Editon on SMA The articles in the August 2007 issue are based on the Neurobiology of Disease in Children Symposium at the Child Neurology Society meeting in October 2006, which focused on SMA and was co-funded by Families of SMA.
Wed Aug 1 2007
Consensus Statement for Standard of Care in SMA Published in the "Journal of Child Neurology" The Consensus Statement for the Standard of Care in SMA contains care recommendations by SMA experts. It is not a substitute for consultation with medical professionals. It presents guidelines only, and individual circumstances will guide treatment decisions in each patient's case.
VALIANT Clinical Trial for Adults with SMA Families of SMA is pleased to announce the funding of the clinical trial VALIANT SMA Study for adults with SMA that Ohio State University is conducting through Project Cure SMA.
Tue Apr 3 2007
FSMA and Paratek Extend Collaboration Press Release Annoucing Families of Spinal Muscular Atrophy and Paratek Pharmaceuticals Expand Drug Discovery Collaboration for Spinal Muscular Atrophy
Wed Feb 14 2007
Clinical Trials Chat Clinical Trials Chat with Dr. Sandra Reyna and Dr. John Kissel in February 2007
