2010 Professional Meetings Relevant to SMA
Please click here to see a list of 2010 professional meetings with sessions devoted to SMA research.
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NIH Launches Drug-Development Program for Rare Diseases
The program comes with new money from Congress and is aimed at finding new treatments for some of the 6,800 rare diseases that collectively affect about 25 million Americans. Of those diseases only 200 have treatments, according to NIH. The program is starting with $24 million in funding this year with expectation of receiving the same amount each year until 2013.
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FSMA Announces Request for Research Proposals by September 4, 2009
Please click here for more information on our 2009 request for grant applications, including details on how to apply.
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2009 Professional Meetings
Please click on this link to see a list of professional conferences relevant to SMA.
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New NIH Grant Opportunity in from of Recovery Act Limited Competition for NIH Grants: Research and Research Infrastructure “Grand Opportunities” (RC2)
Under the Recovery Act, the NIH has established a new program entitled Research and Research Infrastructure “Grand Opportunities” hereafter called the ”GO” grants program.This new program will support projects that address large, specific biomedical and biobehavioral research endeavors that will benefit from significant 2-year funds without the expectation of continued NIH funding beyond two years. The research supported by the ”GO” grants program should have high short-term impact, and a high likelihood of enabling growth and investment in biomedical research and development, public health, and health care delivery. These are two year grants capped at $500,000 per year, and they are due on May 27th.
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New Funding Opportunity at NIH in form of Recovery Act NIH Challenge Grants
This is the first in a series of Recovery Act initiatives to be released by the NIH. These grant are for two years and capped at $500,000 per year. The due date is April 27th and more information can be found by clicking above.
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SMA Europe Call for Grant Applications
SMA Europe (the European Federation of SMA patient associations) has just launched its call for projects aimed at funding international research for finding a cure to SMA (for a total amount of at least 600.000 euros). The deadline for submission is June 15, 2009. Please click the link above for more information.
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FSMA Medical Advisory Council Application Form
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FSMA Medical Advisory Council Fact Sheet
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Researchers Support Letter for SMA Acceleration Act
In order to continue to grow support for the bill, the Patient Advisory Group of the ICC, which includes Families of SMA, FightSMA, MDA, SMA Foundation, and other advocacy groups, has drafted a letter to the lead sponsors of the legislation in the House and the Senate outlining in scientific terms the arguments in favor of passing the bill as soon as possible. We ask that you lend your name to this letter in support of the bill.
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