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Families of Spinal Muscular Atrophy Advancing Research. Supporting Families. Balancing Life's Tough Times. Please note that your login for the forums is different than for the main FSMA website.
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The time now is Thu Jul 02, 2009 11:11 pm |
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| Forum | Topics | Posts | Last Post | |
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| General Category | ||||
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Daily Chat Your personal news / announcements / prayer requests / etc. The Daily Chat area does not require forum registration to post messages. |
19 | 55 | Wed Jun 17, 2009 2:58 pm nancy baffa  |
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New Discussions If you would like to begin discussion on a new topic, please go ahead here! Please check our existing forum topics first - but we know our existing forums cover only a few of the many topics relevant to SMA. We will try to organize new discussions into new or existing forums. |
64 | 225 | Thu May 07, 2009 1:29 pm Linda Sheehy |
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Chapter News and FSMA Event Announcements FSMA Chapters and Chapter representatives may announce events, meetings, etc. here. |
12 | 22 | Thu Jul 03, 2008 7:00 pm Leahsmom |
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Announcements and Instructions Read this before posting anywhere - user instructions and guides, questions and answers about how the forums work |
3 | 5 | Mon Apr 28, 2008 11:29 pm mir4mad |
| Living with SMA | ||||
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Personal Stories Personal stories and photos. You may begin a topic here to introduce yourself and tell your story. Please use the name as the topic. Please don't post questions here - put them in the appropriate forum or start a new discussion. |
57 | 354 | Mon Feb 09, 2009 2:02 pm zachary |
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Adults with SMA Questions and answers to and from adults with SMA Moderator AmyMarquez |
49 | 525 | Thu Jul 02, 2009 7:46 pm JosephJE |
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Recreation Play, travel, sports - ideas, stories and questions |
29 | 87 | Thu Jan 15, 2009 9:53 pm hope4cure |
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Parenting Issues Family relationships, friends for your child, guiding a child with SMA |
24 | 123 | Wed Feb 04, 2009 4:17 am guest2634 |
| Remembrance Category | ||||
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Loving Memories Forum Please feel free to begin a topic with the name of your child or loved one. Share your grief, memories, comfort and photos. (For more private grief discussion, see "Grieving Parents Private Forum" below.) |
34 | 112 | Wed Jun 10, 2009 3:31 pm zachary |
| Medical Issues Category | ||||
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PGD Discussion Forum Prenatal Genetic Diagnosis, CVS, Amniocentesis, Pre-Implantation GD, IVF and related topics |
26 | 189 | Thu Jun 25, 2009 9:34 pm Gavin's mommy |
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Genetics and Diagnosis SMA genetics, being diagnosed with SMA and carrier testing. |
14 | 59 | Sun Nov 16, 2008 2:35 am b4sma_kids |
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Diet and Nutrition Forum Questions and input from SMA parents and people with SMA on this issue. Also includes digestion, constipation, potty training, etc. |
26 | 126 | Fri Jun 05, 2009 7:30 am JustMe |
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Physical and Occupational Therapy Forum Questions and stories from SMA parents and people with SMA. Also includes Speech Therapy. |
9 | 40 | Sat May 09, 2009 5:39 am mistymeanor |
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Respiratory Care Forum Questions and input from SMA parents and people with SMA on respiratory care; also information about BiPAP, In-Exsufflator, Cough Assist, Vents, Trachs and more |
28 | 138 | Sun Jun 21, 2009 3:28 am jana gundy |
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Scoliosis Forum Dealing with the back and spine |
22 | 117 | Thu Jun 04, 2009 12:44 am bettylou |
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Surgery and Hospitalization Forum Questions and stories from SMA parents and people with SMA about undergoing surgery and dealing with hospitalizations |
4 | 7 | Tue Jun 02, 2009 5:59 pm Starry-Dennis |
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Palliative Care - Public Forum For public discussion of Palliative Care. To discuss palliative care privately, please see Palliative Care Private Issues Forum. |
3 | 24 | Mon Jun 29, 2009 12:04 pm cariadanddee |
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Other Medical Issues Forum Ask other questions here - the most used toics will be moved up to Forum status |
48 | 253 | Thu Dec 18, 2008 1:19 pm Helen |
| Equipment Category | ||||
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Computers / Assistive Technology Forum Computer control devices, software, hardware |
5 | 16 | Sat Dec 27, 2008 11:05 am JustMe |
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Equipment Exchange Forum Offer items (for example, wheelchairs, vans, medical supplies) for sale or to give away here, or ask for items. |
22 | 41 | Sat Mar 21, 2009 1:15 am Skarleth Breton |
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Home Renovations Forum Ideas and questions about adapting your home or other location |
8 | 29 | Mon Jan 19, 2009 8:56 pm patricia rudd |
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Standers and Leg Bracing Forum Standers, wheeled standers, RGOs, KAFOs, AFOs and other bracing systems for the hips, legs and feet |
9 | 28 | Wed Dec 17, 2008 8:08 pm bettylou |
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Vehicles and Modifications Forum Buying a van, lifts, tie-downs, car seats and anything else related to transporting wheelchairs and people with SMA |
16 | 36 | Mon Sep 15, 2008 11:03 pm Anna Buoniconti |
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Wheelchairs Forum Power and manual wheelchairs - how to choose and care for them |
19 | 84 | Mon Jan 26, 2009 1:34 am bjmirabile |
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Other Equipment Issues Forum Anything not mentioned above |
22 | 84 | Sat Nov 15, 2008 12:53 pm Max's Mommy |
| Education / Insurance / Employment etc Category | ||||
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Insurance and Government Support Forum Advice on getting coverage, help, funding, etc. |
25 | 64 | Wed Nov 19, 2008 11:11 pm Max's Mommy |
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General Education Forum Dealing with schools, IEPs, preschool and early learning |
11 | 77 | Tue Jan 06, 2009 12:28 pm dectispainting |
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College and University Forum Access, scholarships and any other issues |
8 | 17 | Sun Oct 05, 2008 3:45 pm codeforcible |
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Employment Forum Finding a job; work-related disability issues |
3 | 12 | Sat Oct 27, 2007 10:06 pm Hann |
| Private Discussions Category | ||||
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Palliative Care Issues Private Forum Access to this forum is strictly controlled for the privacy of those using it. To request entrance, click Usergroups at the top of this page, then View Information, then Join Group. To discuss Palliative Care publicly, please look under Medical Issues. |
0 | 0 | No Posts |
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Grieving Parents Private Forum This forum is only open to parents who have lost a child to SMA. To request entrance, click Usergroups at the top of this page, then View Information, then Join Group. To share grief issues publicly, please post in the Loving Memories Forum. |
3 | 16 | Fri Feb 01, 2008 1:33 pm grantsdad |
| Other Countries Category | ||||
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Canada For Canadians to share regional concerns and issues |
3 | 12 | Wed Sep 10, 2008 10:09 pm bettylou |
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Down Under Australia, New Zealand and area |
1 | 2 | Fri Aug 15, 2008 4:12 pm Phoebe |
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Other countries Start topics by country or region here |
15 | 41 | Wed Dec 31, 2008 4:09 pm Fulyaa |
| Potpourri | ||||
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Miscellaneous Topics and posts that don't fit well anywhere else |
1 | 30 | Wed Nov 07, 2007 10:09 pm bettylou |
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