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Families of Spinal Muscular Atrophy Advancing Research. Supporting Families. Balancing Life's Tough Times. Please note that your login for the forums is different than for the main FSMA website.
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The time now is Sat Jul 04, 2009 7:48 am |
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| Forum | Topics | Posts | Last Post | |
|---|---|---|---|---|
| General Category | ||||
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Daily Chat Your personal news / announcements / prayer requests / etc. The Daily Chat area does not require forum registration to post messages. |
26 | 62 | Fri Jul 03, 2009 9:07 pm UFhurturposunty  |
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New Discussions If you would like to begin discussion on a new topic, please go ahead here! Please check our existing forum topics first - but we know our existing forums cover only a few of the many topics relevant to SMA. We will try to organize new discussions into new or existing forums. |
68 | 229 | Sat Jul 04, 2009 2:08 am Duavahadulk |
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Chapter News and FSMA Event Announcements FSMA Chapters and Chapter representatives may announce events, meetings, etc. here. |
14 | 24 | Fri Jul 03, 2009 9:06 pm UFhurturposunty |
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Announcements and Instructions Read this before posting anywhere - user instructions and guides, questions and answers about how the forums work |
3 | 5 | Mon Apr 28, 2008 11:29 pm mir4mad |
| Living with SMA | ||||
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Personal Stories Personal stories and photos. You may begin a topic here to introduce yourself and tell your story. Please use the name as the topic. Please don't post questions here - put them in the appropriate forum or start a new discussion. |
61 | 358 | Fri Jul 03, 2009 9:08 pm UFhurturposunty |
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Adults with SMA Questions and answers to and from adults with SMA Moderator AmyMarquez |
72 | 548 | Sat Jul 04, 2009 7:04 am skimerszz |
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Recreation Play, travel, sports - ideas, stories and questions |
30 | 88 | Fri Jul 03, 2009 9:09 pm UFhurturposunty |
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Parenting Issues Family relationships, friends for your child, guiding a child with SMA |
26 | 125 | Fri Jul 03, 2009 9:10 pm UFhurturposunty |
| Remembrance Category | ||||
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Loving Memories Forum Please feel free to begin a topic with the name of your child or loved one. Share your grief, memories, comfort and photos. (For more private grief discussion, see "Grieving Parents Private Forum" below.) |
35 | 113 | Fri Jul 03, 2009 9:11 pm UFhurturposunty |
| Medical Issues Category | ||||
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PGD Discussion Forum Prenatal Genetic Diagnosis, CVS, Amniocentesis, Pre-Implantation GD, IVF and related topics |
29 | 192 | Fri Jul 03, 2009 9:12 pm UFhurturposunty |
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Genetics and Diagnosis SMA genetics, being diagnosed with SMA and carrier testing. |
15 | 60 | Fri Jul 03, 2009 9:12 pm UFhurturposunty |
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Diet and Nutrition Forum Questions and input from SMA parents and people with SMA on this issue. Also includes digestion, constipation, potty training, etc. |
29 | 129 | Fri Jul 03, 2009 9:13 pm UFhurturposunty |
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Physical and Occupational Therapy Forum Questions and stories from SMA parents and people with SMA. Also includes Speech Therapy. |
12 | 43 | Fri Jul 03, 2009 9:14 pm UFhurturposunty |
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Respiratory Care Forum Questions and input from SMA parents and people with SMA on respiratory care; also information about BiPAP, In-Exsufflator, Cough Assist, Vents, Trachs and more |
29 | 139 | Fri Jul 03, 2009 9:15 pm UFhurturposunty |
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Scoliosis Forum Dealing with the back and spine |
24 | 119 | Fri Jul 03, 2009 9:16 pm UFhurturposunty |
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Surgery and Hospitalization Forum Questions and stories from SMA parents and people with SMA about undergoing surgery and dealing with hospitalizations |
7 | 10 | Fri Jul 03, 2009 9:17 pm UFhurturposunty |
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Palliative Care - Public Forum For public discussion of Palliative Care. To discuss palliative care privately, please see Palliative Care Private Issues Forum. |
6 | 27 | Fri Jul 03, 2009 9:18 pm UFhurturposunty |
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Other Medical Issues Forum Ask other questions here - the most used toics will be moved up to Forum status |
51 | 256 | Fri Jul 03, 2009 9:19 pm UFhurturposunty |
| Equipment Category | ||||
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Computers / Assistive Technology Forum Computer control devices, software, hardware |
7 | 18 | Fri Jul 03, 2009 9:20 pm UFhurturposunty |
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Equipment Exchange Forum Offer items (for example, wheelchairs, vans, medical supplies) for sale or to give away here, or ask for items. |
24 | 43 | Fri Jul 03, 2009 9:21 pm UFhurturposunty |
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Home Renovations Forum Ideas and questions about adapting your home or other location |
10 | 31 | Fri Jul 03, 2009 9:22 pm UFhurturposunty |
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Standers and Leg Bracing Forum Standers, wheeled standers, RGOs, KAFOs, AFOs and other bracing systems for the hips, legs and feet |
11 | 30 | Fri Jul 03, 2009 9:23 pm UFhurturposunty |
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Vehicles and Modifications Forum Buying a van, lifts, tie-downs, car seats and anything else related to transporting wheelchairs and people with SMA |
18 | 38 | Fri Jul 03, 2009 9:24 pm UFhurturposunty |
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Wheelchairs Forum Power and manual wheelchairs - how to choose and care for them |
21 | 86 | Fri Jul 03, 2009 9:25 pm UFhurturposunty |
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Other Equipment Issues Forum Anything not mentioned above |
25 | 87 | Fri Jul 03, 2009 9:26 pm UFhurturposunty |
| Education / Insurance / Employment etc Category | ||||
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Insurance and Government Support Forum Advice on getting coverage, help, funding, etc. |
26 | 65 | Fri Jul 03, 2009 9:26 pm UFhurturposunty |
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General Education Forum Dealing with schools, IEPs, preschool and early learning |
13 | 79 | Fri Jul 03, 2009 9:27 pm UFhurturposunty |
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College and University Forum Access, scholarships and any other issues |
10 | 19 | Fri Jul 03, 2009 9:28 pm UFhurturposunty |
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Employment Forum Finding a job; work-related disability issues |
6 | 15 | Fri Jul 03, 2009 9:29 pm UFhurturposunty |
| Private Discussions Category | ||||
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Palliative Care Issues Private Forum Access to this forum is strictly controlled for the privacy of those using it. To request entrance, click Usergroups at the top of this page, then View Information, then Join Group. To discuss Palliative Care publicly, please look under Medical Issues. |
0 | 0 | No Posts |
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Grieving Parents Private Forum This forum is only open to parents who have lost a child to SMA. To request entrance, click Usergroups at the top of this page, then View Information, then Join Group. To share grief issues publicly, please post in the Loving Memories Forum. |
3 | 16 | Fri Feb 01, 2008 1:33 pm grantsdad |
| Other Countries Category | ||||
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Canada For Canadians to share regional concerns and issues |
6 | 15 | Fri Jul 03, 2009 9:30 pm UFhurturposunty |
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Down Under Australia, New Zealand and area |
1 | 2 | Fri Aug 15, 2008 4:12 pm Phoebe |
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Other countries Start topics by country or region here |
15 | 41 | Wed Dec 31, 2008 4:09 pm Fulyaa |
| Potpourri | ||||
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Miscellaneous Topics and posts that don't fit well anywhere else |
1 | 30 | Wed Nov 07, 2007 10:09 pm bettylou |
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