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The time now is Sat Jul 04, 2009 7:48 am
Families of Spinal Muscular Atrophy Forum Index
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General Category  
No new posts Daily Chat
Your personal news / announcements / prayer requests / etc. The Daily Chat area does not require forum registration to post messages.
   
26 62 Fri Jul 03, 2009 9:07 pm
UFhurturposunty View latest post
No new posts New Discussions
If you would like to begin discussion on a new topic, please go ahead here! Please check our existing forum topics first - but we know our existing forums cover only a few of the many topics relevant to SMA. We will try to organize new discussions into new or existing forums.
   
68 229 Sat Jul 04, 2009 2:08 am
Duavahadulk View latest post
No new posts Chapter News and FSMA Event Announcements
FSMA Chapters and Chapter representatives may announce events, meetings, etc. here.
   
14 24 Fri Jul 03, 2009 9:06 pm
UFhurturposunty View latest post
No new posts Announcements and Instructions
Read this before posting anywhere - user instructions and guides, questions and answers about how the forums work
   
3 5 Mon Apr 28, 2008 11:29 pm
mir4mad View latest post
Living with SMA  
No new posts Personal Stories
Personal stories and photos. You may begin a topic here to introduce yourself and tell your story. Please use the name as the topic. Please don't post questions here - put them in the appropriate forum or start a new discussion.
   
61 358 Fri Jul 03, 2009 9:08 pm
UFhurturposunty View latest post
No new posts Adults with SMA
Questions and answers to and from adults with SMA
Moderator AmyMarquez
72 548 Sat Jul 04, 2009 7:04 am
skimerszz View latest post
No new posts Recreation
Play, travel, sports - ideas, stories and questions
   
30 88 Fri Jul 03, 2009 9:09 pm
UFhurturposunty View latest post
No new posts Parenting Issues
Family relationships, friends for your child, guiding a child with SMA
   
26 125 Fri Jul 03, 2009 9:10 pm
UFhurturposunty View latest post
Remembrance Category  
No new posts Loving Memories Forum
Please feel free to begin a topic with the name of your child or loved one. Share your grief, memories, comfort and photos. (For more private grief discussion, see "Grieving Parents Private Forum" below.)
   
35 113 Fri Jul 03, 2009 9:11 pm
UFhurturposunty View latest post
Medical Issues Category  
No new posts PGD Discussion Forum
Prenatal Genetic Diagnosis, CVS, Amniocentesis, Pre-Implantation GD, IVF and related topics
   
29 192 Fri Jul 03, 2009 9:12 pm
UFhurturposunty View latest post
No new posts Genetics and Diagnosis
SMA genetics, being diagnosed with SMA and carrier testing.
   
15 60 Fri Jul 03, 2009 9:12 pm
UFhurturposunty View latest post
No new posts Diet and Nutrition Forum
Questions and input from SMA parents and people with SMA on this issue. Also includes digestion, constipation, potty training, etc.
   
29 129 Fri Jul 03, 2009 9:13 pm
UFhurturposunty View latest post
No new posts Physical and Occupational Therapy Forum
Questions and stories from SMA parents and people with SMA. Also includes Speech Therapy.
   
12 43 Fri Jul 03, 2009 9:14 pm
UFhurturposunty View latest post
No new posts Respiratory Care Forum
Questions and input from SMA parents and people with SMA on respiratory care; also information about BiPAP, In-Exsufflator, Cough Assist, Vents, Trachs and more
   
29 139 Fri Jul 03, 2009 9:15 pm
UFhurturposunty View latest post
No new posts Scoliosis Forum
Dealing with the back and spine
   
24 119 Fri Jul 03, 2009 9:16 pm
UFhurturposunty View latest post
No new posts Surgery and Hospitalization Forum
Questions and stories from SMA parents and people with SMA about undergoing surgery and dealing with hospitalizations
   
7 10 Fri Jul 03, 2009 9:17 pm
UFhurturposunty View latest post
No new posts Palliative Care - Public Forum
For public discussion of Palliative Care. To discuss palliative care privately, please see Palliative Care Private Issues Forum.
   
6 27 Fri Jul 03, 2009 9:18 pm
UFhurturposunty View latest post
No new posts Other Medical Issues Forum
Ask other questions here - the most used toics will be moved up to Forum status
   
51 256 Fri Jul 03, 2009 9:19 pm
UFhurturposunty View latest post
Equipment Category  
No new posts Computers / Assistive Technology Forum
Computer control devices, software, hardware
   
7 18 Fri Jul 03, 2009 9:20 pm
UFhurturposunty View latest post
No new posts Equipment Exchange Forum
Offer items (for example, wheelchairs, vans, medical supplies) for sale or to give away here, or ask for items.
   
24 43 Fri Jul 03, 2009 9:21 pm
UFhurturposunty View latest post
No new posts Home Renovations Forum
Ideas and questions about adapting your home or other location
   
10 31 Fri Jul 03, 2009 9:22 pm
UFhurturposunty View latest post
No new posts Standers and Leg Bracing Forum
Standers, wheeled standers, RGOs, KAFOs, AFOs and other bracing systems for the hips, legs and feet
   
11 30 Fri Jul 03, 2009 9:23 pm
UFhurturposunty View latest post
No new posts Vehicles and Modifications Forum
Buying a van, lifts, tie-downs, car seats and anything else related to transporting wheelchairs and people with SMA
   
18 38 Fri Jul 03, 2009 9:24 pm
UFhurturposunty View latest post
No new posts Wheelchairs Forum
Power and manual wheelchairs - how to choose and care for them
   
21 86 Fri Jul 03, 2009 9:25 pm
UFhurturposunty View latest post
No new posts Other Equipment Issues Forum
Anything not mentioned above
   
25 87 Fri Jul 03, 2009 9:26 pm
UFhurturposunty View latest post
Education / Insurance / Employment etc Category  
No new posts Insurance and Government Support Forum
Advice on getting coverage, help, funding, etc.
   
26 65 Fri Jul 03, 2009 9:26 pm
UFhurturposunty View latest post
No new posts General Education Forum
Dealing with schools, IEPs, preschool and early learning
   
13 79 Fri Jul 03, 2009 9:27 pm
UFhurturposunty View latest post
No new posts College and University Forum
Access, scholarships and any other issues
   
10 19 Fri Jul 03, 2009 9:28 pm
UFhurturposunty View latest post
No new posts Employment Forum
Finding a job; work-related disability issues
   
6 15 Fri Jul 03, 2009 9:29 pm
UFhurturposunty View latest post
Private Discussions Category  
No new posts Palliative Care Issues Private Forum
Access to this forum is strictly controlled for the privacy of those using it. To request entrance, click Usergroups at the top of this page, then View Information, then Join Group. To discuss Palliative Care publicly, please look under Medical Issues.
   
0 0 No Posts
No new posts Grieving Parents Private Forum
This forum is only open to parents who have lost a child to SMA. To request entrance, click Usergroups at the top of this page, then View Information, then Join Group. To share grief issues publicly, please post in the Loving Memories Forum.
   
3 16 Fri Feb 01, 2008 1:33 pm
grantsdad View latest post
Other Countries Category  
No new posts Canada
For Canadians to share regional concerns and issues
   
6 15 Fri Jul 03, 2009 9:30 pm
UFhurturposunty View latest post
No new posts Down Under
Australia, New Zealand and area
   
1 2 Fri Aug 15, 2008 4:12 pm
Phoebe View latest post
No new posts Other countries
Start topics by country or region here
   
15 41 Wed Dec 31, 2008 4:09 pm
Fulyaa View latest post
Potpourri  
This forum is locked: you cannot post, reply to, or edit topics. Miscellaneous
Topics and posts that don't fit well anywhere else
   
1 30 Wed Nov 07, 2007 10:09 pm
bettylou View latest post
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