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Families of Spinal Muscular Atrophy Advancing Research. Supporting Families. Balancing Life's Tough Times. Please note that your login for the forums is different than for the main FSMA website.
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The time now is Thu Mar 11, 2010 9:06 am |
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| Forum | Topics | Posts | Last Post | |
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| General Category | ||||
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Daily Chat Your personal news / announcements / prayer requests / etc. The Daily Chat area does not require forum registration to post messages. |
21 | 57 | Wed Mar 10, 2010 11:38 am kristimccollum  |
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New Discussions If you would like to begin discussion on a new topic, please go ahead here! Please check our existing forum topics first - but we know our existing forums cover only a few of the many topics relevant to SMA. We will try to organize new discussions into new or existing forums. |
81 | 287 | Wed Mar 10, 2010 12:02 pm kristimccollum |
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Chapter News and FSMA Event Announcements FSMA Chapters and Chapter representatives may announce events, meetings, etc. here. |
11 | 21 | Mon Mar 08, 2010 8:31 pm Brad and Bellas Mom |
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Announcements and Instructions Read this before posting anywhere - user instructions and guides, questions and answers about how the forums work |
3 | 5 | Mon Apr 28, 2008 11:29 pm mir4mad |
| Living with SMA | ||||
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Personal Stories Personal stories and photos. You may begin a topic here to introduce yourself and tell your story. Please use the name as the topic. Please don't post questions here - put them in the appropriate forum or start a new discussion. |
55 | 369 | Sun Mar 07, 2010 11:25 am enzon |
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Adults with SMA Questions and answers to and from adults with SMA Moderator AmyMarquez |
35 | 553 | Tue Feb 23, 2010 1:18 pm Pinevalleyite |
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Recreation Play, travel, sports - ideas, stories and questions |
29 | 92 | Tue Mar 02, 2010 6:12 pm tarigarringer |
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Parenting Issues Family relationships, friends for your child, guiding a child with SMA |
26 | 136 | Sun Dec 20, 2009 10:12 am JustMe |
| Remembrance Category | ||||
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Loving Memories Forum Please feel free to begin a topic with the name of your child or loved one. Share your grief, memories, comfort and photos. (For more private grief discussion, see "Grieving Parents Private Forum" below.) |
33 | 118 | Mon Mar 01, 2010 8:08 pm joy accomando |
| Medical Issues Category | ||||
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PGD Discussion Forum Prenatal Genetic Diagnosis, CVS, Amniocentesis, Pre-Implantation GD, IVF and related topics |
21 | 192 | Thu Mar 04, 2010 7:14 pm jessekaye |
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Genetics and Diagnosis SMA genetics, being diagnosed with SMA and carrier testing. |
12 | 65 | Tue Mar 02, 2010 2:52 pm JustMe |
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Diet and Nutrition Forum Questions and input from SMA parents and people with SMA on this issue. Also includes digestion, constipation, potty training, etc. |
27 | 144 | Mon Feb 01, 2010 9:23 pm Guest |
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Physical and Occupational Therapy Forum Questions and stories from SMA parents and people with SMA. Also includes Speech Therapy. |
7 | 40 | Tue Feb 23, 2010 11:14 pm Jez Howat |
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Respiratory Care Forum Questions and input from SMA parents and people with SMA on respiratory care; also information about BiPAP, In-Exsufflator, Cough Assist, Vents, Trachs and more |
25 | 133 | Tue Oct 06, 2009 9:00 am Mitch |
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Scoliosis Forum Dealing with the back and spine |
21 | 118 | Tue Feb 23, 2010 4:36 pm tonymatell |
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Surgery and Hospitalization Forum Questions and stories from SMA parents and people with SMA about undergoing surgery and dealing with hospitalizations |
4 | 7 | Thu Nov 05, 2009 6:39 pm Guest |
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Palliative Care - Public Forum For public discussion of Palliative Care. To discuss palliative care privately, please see Palliative Care Private Issues Forum. |
0 | 21 | Tue Jul 07, 2009 8:08 am Mitch |
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Other Medical Issues Forum Ask other questions here - the most used toics will be moved up to Forum status |
48 | 261 | Mon Mar 08, 2010 7:03 pm sankjeinde |
| Equipment Category | ||||
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Computers / Assistive Technology Forum Computer control devices, software, hardware |
3 | 16 | Mon Nov 23, 2009 3:53 am help2talk |
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Equipment Exchange Forum Offer items (for example, wheelchairs, vans, medical supplies) for sale or to give away here, or ask for items. |
22 | 41 | Mon Mar 08, 2010 8:29 pm Brad and Bellas Mom |
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Home Renovations Forum Ideas and questions about adapting your home or other location |
6 | 27 | Mon Jan 19, 2009 8:56 pm patricia rudd |
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Standers and Leg Bracing Forum Standers, wheeled standers, RGOs, KAFOs, AFOs and other bracing systems for the hips, legs and feet |
3 | 22 | Wed Dec 17, 2008 8:08 pm bettylou |
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Vehicles and Modifications Forum Buying a van, lifts, tie-downs, car seats and anything else related to transporting wheelchairs and people with SMA |
13 | 34 | Sat Jul 11, 2009 2:16 pm LINZEY |
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Wheelchairs Forum Power and manual wheelchairs - how to choose and care for them |
17 | 86 | Fri Feb 19, 2010 11:01 pm Eduardo |
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Other Equipment Issues Forum Anything not mentioned above |
22 | 84 | Sat Sep 19, 2009 6:50 pm Jenny Campbell |
| Education / Insurance / Employment etc Category | ||||
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Insurance and Government Support Forum Advice on getting coverage, help, funding, etc. |
20 | 60 | Fri Aug 14, 2009 2:03 pm subur-ba-knight |
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General Education Forum Dealing with schools, IEPs, preschool and early learning |
5 | 5 | Thu Mar 11, 2010 6:57 am Newshereuri |
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College and University Forum Access, scholarships and any other issues |
5 | 14 | Sun Oct 05, 2008 3:45 pm codeforcible |
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Employment Forum Finding a job; work-related disability issues |
3 | 13 | Tue Nov 10, 2009 10:06 am ailaonzo |
| Private Discussions Category | ||||
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Palliative Care Issues Private Forum Access to this forum is strictly controlled for the privacy of those using it. To request entrance, click Usergroups at the top of this page, then View Information, then Join Group. To discuss Palliative Care publicly, please look under Medical Issues. |
0 | 0 | No Posts |
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Grieving Parents Private Forum This forum is only open to parents who have lost a child to SMA. To request entrance, click Usergroups at the top of this page, then View Information, then Join Group. To share grief issues publicly, please post in the Loving Memories Forum. |
3 | 16 | Fri Feb 01, 2008 1:33 pm grantsdad |
| Other Countries Category | ||||
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Canada For Canadians to share regional concerns and issues |
0 | 8 | Wed Sep 10, 2008 10:09 pm bettylou |
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Down Under Australia, New Zealand and area |
0 | 1 | Fri Aug 15, 2008 4:12 pm Phoebe |
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Other countries Start topics by country or region here |
9 | 33 | Mon Dec 14, 2009 5:27 pm subur-ba-knight |
| Potpourri | ||||
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Miscellaneous Topics and posts that don't fit well anywhere else |
1 | 30 | Wed Nov 07, 2007 10:09 pm bettylou |
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