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Newly DiagnosedUnderstanding SMASpinal Muscular Atrophy ConferenceFor ResearchersFor MediaAbout Families of SMA

Connect with Families of SMA:



SMA Drugs in Development:

The Villagio Town Center

Saturday, May 11, 2013  
8:00 - 10:30 a.m.

Online registration for this event has ended. If you would like to participate, please visit the registration table tomorrow morning.

To donate to a specific walker or team, click on 'find a walker'; or simply click 'donate' to contribute to the walk.

Registrations must be received by Monday, April 29 to be guaranteed a T-shirt.  

Music Provided by Special Guest Macy Medford!

Families of SMA is the world’s leader focused on funding SMA research to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $55 million in research and has been involved in funding half of all the ongoing novel drug programs for SMA.

Families of SMA is a nonprofit 501(c)3 organization, with 31 Chapters and 90,000 members and supporters throughout the United States. The organization’s work has produced major discoveries, including identification of the underlying cause and a back-up gene for the disease, which provides a clearly defined target for disease altering therapies. The organization is also dedicated to supporting SMA families through networking, information and services and to improving care for all SMA patients.

Click here to learn more about Families of SMA and our programs.

If you have any questions, please contact Meridith Struble at (713) 962-2056 or mstruble@entouch.net.

National Sponsors


Quest Diagnostics

Total Raised: $43,228
Goal: $15,000
Additional Information

Click here for event details.

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Presenting Sponsor


Partnering Sponsor



Laura and Mark Lukin DDS


The Medford Family

Omega Pools

D.C. Wrecker Service

Delta Flange & Manufacturing, Inc.

Northwest Truck & Auto Center


Family Sponsor
Glenn R. and Catherine P. Harris
William and Theresa Broman
Meridith, Justin, Emma, Allyson,
and Tate Struble
Lindsey Neuhaus
Joseph, Allison and Alexandra Scott
Paul and Sheree' Norton
Ronald Shiell
Earl, Sandy, Amanda, and Eric Cegielski
Lee, Christine, Audrey, Ava,
and Henry Hollmann
Jimmy, Leisa, MacKenzie, and Maci Winters
The Gammon Family
Nancy and Jim Fatheree
Chuck and Robin Manes
Paul and Stephanie Strong

Melissa Waterwall
Elizabeth Powell
Lea and Luke Smolik
Nikki, Paige, Eve and Brooke Alvarez
Michele Krenek
Ashley Hoover
Carrie Patton
Chad and Shannon Waits
Stan and Diane Clark
The Peterson Family
Mark and Lauren Priestner
Cody Matkin
Agnes Teng
Lynn, Joey and Rachel Farmer
Michelle Gisler
Larry & Betty Cegielski
Joe Dunlap
The Craven Family
Trisha Craven

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